Rare Diseases


Having a chronic illness is enough of a burden to bear, but when it’s a rare disease it can be even harder. People who are very sick have to find their own doctors, do their own research, struggle with family and friends who just don’t understand, not to mention cope with the fact that their lives are changed forever.

 
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educational and informational purposes only

and should not be considered to be a specific diagnosis or treatment plan for any individual situation.   Use of this website and the information contained herein does not create a doctor-patient relationship.   Always consult with your own doctor in connection with any questions or issues you may have regarding your own health or the health of others.