Rare Diseases

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Rare Diseases

Having a chronic illness is enough of a burden to bear, but when it’s a rare disease it can be even harder. People who are very sick have to find their own doctors, do their own research, struggle with family and friends who just don’t understand, not to mention cope with the fact that their lives are changed forever.

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There are far, far better things ahead than any we leave behind. C.S.Lewis    

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